Sickle Cell Disease Association of America and Aruvant Sciences Forge New Partnership to Educate Around Gene Therapy

HANOVER, Md. and NEW YORK, Oct. 12, 2020 /PRNewswire/ — The Sickle Cell Disease Association of America (SCDAA) and Aruvant Sciences are proud to announce a new partnership to create educational programs to increase awareness of gene therapy as a potential curative treatment option for sickle cell disease patients. This collaboration will help SCDAA continue to deliver on its mission, while assisting Aruvant in learning more about the needs of sickle cell disease (SCD) patients. Under the agreement, Aruvant will collaborate with SCDAA to host local and national educational events and develop materials for a public-awareness campaign.

“In partnership with SCDAA, we are working to educate patients about gene therapy, while gaining critical insights from the patient community for our ARU-1801 SCD development program,” said Will Chou, M.D., chief executive officer (CEO) of Aruvant. “Now is a perfect time to work with SCDAA to educate the community about gene therapy

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Texas flouted special education guidelines for therapy, U.S. officials say

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Texas has failed to ensure children with developmental delays have early access to speech and occupational therapy and other services, according to a letter ​written this week by U.S. education officials who say the state is not complying with federal special education guidelines.

The Texas Health and Human Services Commission has three months to draw up a plan to ensure that a program that pays for infants and toddlers to receive such early intervention therapies is reaching all eligible Texans, federal officials wrote. Failure to do so could cost the state federal funding.

After years of budget cuts in Texas caused nonprofit therapy providers to drop out of the program, U.S. Department of Education officials found Texas to be in “significant noncompliance” with education guidelines on early intervention services.

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